Herlitz Junctional Epidermolysis Bullosa (H-JEB) and Social Security Disability
Social Security Disability Lawyer
Typically, applying for and receiving social security disability benefits can take many months. But what if your disabling condition is so severe that you cannot wait? Herlitz junctional epidermolysis bullosa (H-JEB) is a disabling condition on the Compassionate Allowance List, which qualifies an individual for an expedited approval process.
What is JEB?
JEB is one of the better-known forms of a family of genetic disorders called epidermolysis bullosa. Epidermolysis bullosa is a condition that severely weakens the skin, causing it to blister and erode in response to minor friction such as itching or rubbing. There are two types of JEB. The Herlitz form, known as H-JEB, is the more serious of the two. Those with H-JEB lack the mechanism that holds the layers of skin together, and as a result, experience extensive blistering over large regions of the body and inside the mucous membranes. Chronic open wounds both inside the body and on the skin render them highly susceptible to bacterial infections and unable to retain nutrients required for healthy growth and development. There is no cure for H-JEB. Most individuals diagnosed with the disease do not survive past the first year of life.
Some of the symptoms of H-JEB include:
- Extensive blistering over large regions of the body
- Blistering in the mucous membranes (i.e. inside the mouth, nose, and digestive tract)
- Patches of bumpy, pink granulation tissue over the skin, especially in high-friction areas
- Slow growth
- Weak, hoarse cry
- Difficulty breathing
- Abnormalities of the fingers and toes
- Joint deformities
- Hair loss
- Kidney troubles
If you or a loved one is experiencing these symptoms, it is important to talk with a doctor immediately.
Applying for Social Security Disability Benefits and H-JEB
H-JEB automatically qualifies you for social security disability benefits under the Social Security Administration’s guidelines. If you or a loved one is diagnosed with H-JEB, then you are considered disabled for at least 24 months from the date of diagnosis.
If you or a loved one has been diagnosed with H-JEB, contact an experienced social security disability lawyer today. Please call us at 1-800-882-5500 or fill out a free consultation form for a free evaluation of your social security disability case.